I’m SAILAJA
PATIENT EXPERT, ADVOCATE, FOUNDER
My Services
Clinical Trial Design
Advisory on clinical trial design for Prurigo Nodularis and rare skin conditions.
Educational Initiatives
Advisory and participating as patient expert in Prurigo Nodularis educational initiatives.
Speaker & Panelist
Prurigo Nodularis, rare derm, rare diseases speaker and panelist.
Consultant & Partner
Prurigo Nodularis and rare disease patient expert advisory for industry, CROs, HTAs, training and other.
Writer
Various non-scientific and plain language writing.
Working Group Member
Rare disease partnerships and platforms advisory committee member.
About Me
With almost 20 years lived experience of the rare, debilitating and distressing skin condition, Prurigo Nodularis (itchy, neuroimmunological, inflammatory condition) I am the Founder and Chair of the Board of Trustees of the charity Prurigo Nodularis International, which has over 5,000 global members. I am a patient leader, patient expert, as well as a passionate and outspoken advocate, determined to see rare disease patients receive the dedicated care pathways and treatments they deserve and need.