Welcome to my blog
I talk about my journey as a rare disease patient, advocate, charity founder and so much more .
Let’s talk about itch!
We’ve all had itches, but you haven’t really experienced itch unless you’ve lived with a Prurigo Nodularis (PN) itch. Over the last two decades I’ve been on only what can be described as ‘a discovery of itch’ and what a ride it’s been. I could write a book! As you...
My Prurigo Nodularis journey
It started with one… Over the course of a year, one angry lesion became two. Over the next two years a dozen itchy lesions populated my arms. Within half a decade I was carpeted from top to toe in hundreds of itchy lesions. This itch has layers, it itches, stings,...
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